Helpful Resources for People Living with Parkinson's Disease
These Parkinson’s disease resources will help you find more information and connect with others living with the condition. Many of these sites will direct you to the latest Parkinson's disease news and research, as well as opportunities to get involved with local chapters and organizations.
ParkinsonsHealth.com
ParkinsonsHealth.com provides in-depth information for people living with Parkinson's disease, including disease education, news, and tips for coping with the challenges of Parkinson's disease and getting more enjoyment out of life. You can also sign up for a free “Life in Balance, A Newsletter for People and Families Living with PD®".
American Parkinson's Disease Association (APDA)
The APDA was founded in 1961 to “ease the burden and find a cure” for Parkinson's disease. The APDA site offers basic information about Parkinson's disease, as well as links to local chapters and Information Referral Centers.
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National Parkinson Foundation (NPF)
The mission of the NPF is to improve the quality of life of people living with Parkinson's disease by supporting research, education, and outreach. The NPF site includes general information about Parkinson's disease, links to local chapters, and information about research studies. If you would like to get information from a doctor online, the NPF also offers an "Ask the Doctor" Forum
Parkinson's Disease Foundation (PDF)
The PDF is a national non-profit organization devoted to education, advocacy, and the funding of research. The PDF site offers basic information about Parkinson's disease, as well as bulletin boards for Parkinson's disease community and scientific news.
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National Institute of Neurological Disorders and Stroke (NINDS)
The mission of NINDS is to reduce the burden of neurological disease. The NINDS site features the latest neurological research news, as well as basic information on a wide range of neurological disorders, including Parkinson's disease.
Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation for Parkinson's Research is dedicated to the development of a cure and improved therapies for Parkinson's disease through an aggressively funded research agenda. This site contains general information about Parkinson's disease, research, and related news and events.
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Parkinson's Action Network (PAN)
PAN advocates for increased and accelerated investment of public resources to ease the burden of and find a cure for the approximately one million Americans who have Parkinson's disease. The PAN site features basic information about Parkinson's disease, scientific updates, and information about PAN’s grassroots advocacy program.
Parkinson Study Group (PSG)
The PSG is a non-profit, cooperative group of Parkinson's disease experts from medical centers in the United States and Canada who are dedicated to improving treatment for people affected by the condition. The PSG site features basic information about Parkinson's disease, as well as information on what a clinical trial is and a listing of current Parkinson's disease trials.
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Parkinson's Disease Research, Education and Clinical Centers (PADRECCs)
Established by the U.S. Department of Veterans Affairs, each PADRECC conducts research covering basic biomedicine, rehabilitation, health services delivery, and clinical trials. This site explains the general program and lists contact information for each of the current PADRECCs.
WE MOVE – Worldwide Education and Awareness for Movement Disorders
WE MOVE is a comprehensive online resource for movement disorder information and a hub of movement disorder activities on the Web. The WE MOVE site features detailed information about Parkinson's disease, as well as numerous other movement disorders and related conditions.
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European Parkinson's Disease Association (EPDA)
The EPDA aims to: promote international understanding of Parkinson's disease; enable patients and caregivers to draw on best caring practices worldwide; provide access to the latest medical and surgical advice; and help patients and their families make informed choices to achieve the best quality of life possible. The EPDA site features Parkinson's disease information, links to worldwide members, and a media center with news and information links.
Parkinson Society Canada
Parkinson Society Canada is a not-for-profit charitable organization dedicated to easing the burden of and finding a cure for Parkinson's disease. This site contains general information and news about Parkinson's disease, advocacy, and clinical trials.
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World Parkinson Disease Association (WPDA)
The WPDA seeks many goals, including to improve the quality of life of people living with Parkinson's disease worldwide, broaden public awareness, and contribute to the development and sharing of knowledge and information about Parkinson's disease. The WPDA site contains articles for people living with Parkinson’s disease, as well as the latest news about Parkinson's disease research.
National Family Caregivers Association (NFCA)
The NFCA exists to support caregivers and to speak out publicly for their needs. The NFCA site has a wealth of information for caregivers, including news, tools and tips, and support resources, all delivered with a message of self-advocacy and empowerment.
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ClinicalTrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research. ClinicalTrials.gov includes information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from healthcare professionals. For a current list of clinical trials related to Parkinson's disease, visit ClinicalTrials.gov and enter "Parkinson's" in the search box.
PDtrials.org
PDtrials.org provides up-to-date information on Parkinson's disease clinical trials currently enrolling participants in the U.S. indexed by symptom and location, as well as the latest news about what's happening in the world of Parkinson's disease trials.
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